Brynnik's Transplant Day

Today is Day Zero for my little unicorn. My brave, strong man has endured 4 grueling days of intense chemotherapy and 1 day of radiation in preparation for today. To say the past 5 days have been grueling is an understatement, for both Brynnik and our family. Physically and emotionally challenging, with new challenges appearing hourly at times. It’s all worth it, as it provides the ability and opportunity my baby to become well and survive. A second chance at life.

Today is that day. We celebrated his second birthday tonight. We wanted to celebrate his bravery and strength, and all that he has done and endured to make it to today. He has a long road ahead which unfortunately starts tomorrow, Day One, with a second round of chemo which will make the initial chemo treatment look like a day at Disney.

I thank you all for your kind words, your prayers, your thoughts, your help, and all the love and caring you all have shown Brynnik and our family. I am so proud of my little man, and so thankful for our friends, family and supporters during this time.
Blessings and much love from myself and my family.

Love, Darrell, Jennifer, Brynnik and Sienna

#brynnik, #brynnikjohnson, #bonemarrow, #bonemarrowtransplant, #dayzero, #brynnikdallas, #brynnikjohnsondallas, #family, #bonemarrowsurvivors

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Brynnik Johnson

The Johnson Family: Sienna, Brynnik, Darrell, Jennifer

Brynnik and Jennifer Johnson

Brynnik has a bone marrow donor

It's official. Brynnik has a 9/10 A level donor. Thank God. 

He started his pre-chemo, pre-transplant testing yesterday and today. GloFil test today to measure his kidney function. Echo, EKG, and pulmonary function test. Things are moving fast now. My little unicorn is in for several trying months. But, we are believing in a full recovery. Thank you everyone for all of your kindness, prayers, and support. Much love. 

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Brynnik Johnson update - March 6th

Back at Children’s Hospital this morning, Brynnik needs a new set of platelets, so it’s transfusion day. The Dr.’s checked his ferritin levels because he has received so many transfusions since this started back in November. His ferritin levels came back at 856, with normal ranges between 7 - 140.

Even with the significant elevation of his ferritin levels the doctors don’t seem to be as concerned; however, they definitely want to keep an eye on them as there is a potential it could pose a problem once we are in the chemotherapy and bone marrow transplant phase.

Good news is we have two potential donors. One is an international donor and conducted their testing last week. Children’s is waiting for their samples so that they can perform their own HLA tests. The other potential donor is stateside and had their testing conducted just yesterday. Hopefully we will have the results from both potential donors back next week.

We keep praying that both donors will be a match for Brynnik. In case he had a host versus graft reaction during the transplant phase, having a second donor lined up in advance would be very beneficial.

I am continually amazed, humbled and inspired by how strong he is throughout this whole ordeal. God certainly made him a warrior.

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Brynnik Johnson at Children's Medical Center - Dallas, TX

Darrell and Brynnik Johnson

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Brynnik Johnson taking a spin around the hospital

Brynnik Johnson and Darrell Johnson "taking a
spin" during Brynnik's red blood cell and platelet transfusion today at
Children's Medical Hospital. #brynnik #brynnikjohnson #brynnikjohnsondallas #brynnikdallas #bonemarrow #bonemarrowtransplant

Brynnik on Anabolic steroids

The doctors have started Brynnik on an anabolic steroid (Anadrol) to help strengthen him and hopefully minimize the frequency of his transfusions, while they continue to run tests, and search for a donor match. Brynnik asked if he would be able to grow a handle bar mustache. God, I'm amazed at the strength of this kid. With all that's happening he's still smiling, still laughing, still helping others, still being an inspiration to us all.

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