Showing posts with label brynnik. Show all posts
Showing posts with label brynnik. Show all posts

Saturday, May 16, 2015

Sibling love

The sweet donuts were able to spend a little bit of time together this morning. Such cuties. 




#brynnik #brynnikjohnson #brynnikdallas #dallas #sienna #siennajohnson 

Www.gofundme.com/brynnikjohnson


Sunday, May 10, 2015

Fever post bone marrow transplant

We are on our second round of fever tonight. We are on day +16, and engraftment happens. On average, between days +21 to +30, with some children taking up to day +40. 
The biggest concern with the recent fever is it could be the initial signs of an infection. On the opposite spectrum, it could be the initial signs on engraftment . 
They took 4 syringes of blood out of Brynnik's central line for testing and to run cultures. They are starting him on a broad spectrum antibiotic to help against the potential risk of infection.  

Luckily he is sleeping peacefully right now. 

Please say any extra prayer for Brynnik tonight. 

And thank you again for all your love, compassion and kindness during this time. 

Friday, May 8, 2015

Day +11

We've had some good moments, followed by lots of sleeping and nausea. And, his hair is coming out in patches. But, he is still able to find joy and laughter each day. I'm so proud of him. He truly is a magical little unicorn. 

http://www.gofundme.com/brynnikjohnson

The Artist, Brynnik, at work

Brynnik cuddles are the best

Tuesday, February 24, 2015

Brynnik on Anabolic steroids

The doctors have started Brynnik on an anabolic steroid (Anadrol) to help strengthen him and hopefully minimize the frequency of his transfusions, while they continue to run tests, and search for a donor match. Brynnik asked if he would be able to grow a handle bar mustache. God, I'm amazed at the strength of this kid. With all that's happening he's still smiling, still laughing, still helping others, still being an inspiration to us all.

#brynnikjohnson #gofundmebrynnikjohnson #bethematch #brynnikjohnsonfund #brynnikjohnsontransplant

http://www.gofundme.com/brynnikjohnson