Brynnik Johnson is an amazing 9-year old from Dallas, TX who suffers from Aplastic Anemia and is going through chemotherapy and a bone marrow transplant.
Showing posts with label brynnik. Show all posts
Showing posts with label brynnik. Show all posts
Saturday, May 16, 2015
Sibling love
The sweet donuts were able to spend a little bit of time together this morning. Such cuties.
Sunday, May 10, 2015
Fever post bone marrow transplant
We are on our second round of fever tonight. We are on day +16, and engraftment happens. On average, between days +21 to +30, with some children taking up to day +40.
The biggest concern with the recent fever is it could be the initial signs of an infection. On the opposite spectrum, it could be the initial signs on engraftment .
They took 4 syringes of blood out of Brynnik's central line for testing and to run cultures. They are starting him on a broad spectrum antibiotic to help against the potential risk of infection.
Luckily he is sleeping peacefully right now.
Please say any extra prayer for Brynnik tonight.
And thank you again for all your love, compassion and kindness during this time.
Friday, May 8, 2015
Day +11
We've had some good moments, followed by lots of sleeping and nausea. And, his hair is coming out in patches. But, he is still able to find joy and laughter each day. I'm so proud of him. He truly is a magical little unicorn.
http://www.gofundme.com/brynnikjohnson
http://www.gofundme.com/brynnikjohnson
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| The Artist, Brynnik, at work |
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| Brynnik cuddles are the best |
Tuesday, February 24, 2015
Brynnik on Anabolic steroids
The doctors have started Brynnik on an anabolic steroid
(Anadrol) to help strengthen him and hopefully minimize the frequency of his
transfusions, while they continue to run tests, and search for a donor match.
Brynnik asked if he would be able to grow a handle bar mustache. God, I'm
amazed at the strength of this kid. With all that's happening he's still
smiling, still laughing, still helping others, still being an inspiration to us
all.
#brynnikjohnson #gofundmebrynnikjohnson #bethematch #brynnikjohnsonfund #brynnikjohnsontransplant
#brynnikjohnson #gofundmebrynnikjohnson #bethematch #brynnikjohnsonfund #brynnikjohnsontransplant
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