Brynnik's Transplant Day

Today is Day Zero for my little unicorn. My brave, strong man has endured 4 grueling days of intense chemotherapy and 1 day of radiation in preparation for today. To say the past 5 days have been grueling is an understatement, for both Brynnik and our family. Physically and emotionally challenging, with new challenges appearing hourly at times. It’s all worth it, as it provides the ability and opportunity my baby to become well and survive. A second chance at life.

Today is that day. We celebrated his second birthday tonight. We wanted to celebrate his bravery and strength, and all that he has done and endured to make it to today. He has a long road ahead which unfortunately starts tomorrow, Day One, with a second round of chemo which will make the initial chemo treatment look like a day at Disney.

I thank you all for your kind words, your prayers, your thoughts, your help, and all the love and caring you all have shown Brynnik and our family. I am so proud of my little man, and so thankful for our friends, family and supporters during this time.
Blessings and much love from myself and my family.

Love, Darrell, Jennifer, Brynnik and Sienna

#brynnik, #brynnikjohnson, #bonemarrow, #bonemarrowtransplant, #dayzero, #brynnikdallas, #brynnikjohnsondallas, #family, #bonemarrowsurvivors

http://www.gofundme.com/brynnikjohnson

Brynnik Johnson

The Johnson Family: Sienna, Brynnik, Darrell, Jennifer

Brynnik and Jennifer Johnson

Head shave party

Darrell and Brynnik had a head shave party over the weekend at Brass Tacks Barbershop.  With Brynnik being admitted into Children's Medical Hospital this coming Tuesday, Darrell wanted to be preemptive and shave both their heads prior to Brynnik starting chemo this week.

The boys went in, with Brynnik going first. He's such a strong little man. I took videos and pictures of their experience, links to them are below.

In addition to Darrell and Brynnik shaving their heads, Darrell's brother Jay who lives in Florida, shaved his head in support, as did our good friend Tony Guthrie.

Thank you for all your love and support.  I am so proud of Brynnik and Darrell, they are amazing examples of strength and love.  

Darrell, Sienna and Brynnik. I love my amazing family. 

Brynnik Video 1: https://www.youtube.com/watch?v=ka4FzXMjy8s

Brynnik Video 2: https://www.youtube.com/watch?v=0zbFQWHZDeA

Darrell Video 1:  https://www.youtube.com/watch?v=Cu35JI8m89w

Darrell Video 2: https://www.youtube.com/watch?v=jB_9EIx4hOU

Photos of Uncle Jay and "Mr. Fox:"

Love you Uncle Jay

Yea Uncle Tony "Fox"

Post hospital burgers

Brynnik, Darrell and I were chowing down on some tasty burgers at Hunky's this afternoon.  The little man needed protein and iron, and Darrell and I are always up for a good burger. 

Enjoying time at Hunky's with Brynnik

Enjoying time at Hunky's with Brynnik

Brynnik has a bone marrow donor

It's official. Brynnik has a 9/10 A level donor. Thank God. 

He started his pre-chemo, pre-transplant testing yesterday and today. GloFil test today to measure his kidney function. Echo, EKG, and pulmonary function test. Things are moving fast now. My little unicorn is in for several trying months. But, we are believing in a full recovery. Thank you everyone for all of your kindness, prayers, and support. Much love. 

http://www.gofundme.com/brynnikjohnson

Clowning around with Brynnik

Clowning around while getting blood today. Hopefully getting final donor results today. Drs. are going to start scheduling the unicorn man beasts CT scan, ultrasounds, breathing, etc. etc. tests for next week. We got Beans telomere results back. Her Granulocytes are low, so now they are going to run TERTS test on her to see if she has the same unknown chromosomal anomaly as her brother. God never gives you more than you can handle. Not sure He doesn't have me confused for someone else. But, he certainly gave Brynnik his heart and strength. I'm so grateful to have such an amazing wife and partner who has stood by our side, keeps us laughing, and gives awesome snuggles.

Clowning around with my sweet son Brynnik

Family weekend

We had a wonderful family weekend despite a little bit of cold and some rain.  I love our family weekends together, we love to keep the kiddos active and busy with play dates and lots of family time together. 

Some highlights and pictures from our weekend.....

Darrell finishing the exterior at Oak Knoll

Jennifer having kiddo time on Saturday morning, snuggling watching Legally Blonde

Surprising Darrell on the job site for family kisses and hugs

Shopping for Nerf guns, Monster High dolls, and sugar free Red Bull at Target

Chick-fil-A lunch and playground time

Jennifer and the kiddos "car dancing" to our favorite tunes

The kids having a blast during their play dates with Gabby and Frank 

Oak Cliff Pizza and move night - Big Hero 6

FAMILY SNUGGLE before bed

Church at Shoreline Dallas 

Family brunch at iHop

Butter pecan syrup

Lots of laughs and hugs 

Hook, Line and sinker for Brynnik

Darrell and Sienna making shells for dinner

Darrell bringing me home blue hydrangeas 

Mr, and Mrs. Fox over for dinner

Mr. Fox playing zombies with Brynnik and Sienna

Introducing the Foxes to the evils of Little Debbie snack cakes

More family snuggles... lots of family snuggles when we are together. 

Lots and lots of love. 

Darrell Johnson at Oak Knoll

Kiddos coming home with their presents from Target

Brynnik and Darrell at iHop

Brynnik and Darrell at iHop

Brynnik working his "nerd" at iHop

Brynnik Johnson - the ninja skull warrior 

Darrell the shell master at work

Darrell and Sienna making shells

Darrell and Bean making shells

George and the beautiful flowers