Brynnik's first apartment

Yesterday we signed the lease on Brynnik’s “bachelor pad” for the first 100-days after his release from the hospital.

The first 100-days are absolutely critical to his care and well-being, and Darrell and I feel whole heartedly that putting him in an apartment which is brand new construction, hepa-filtered apartment unit, where he will be the very first resident of his unit, is the most responsible and smartest option when it comes to his health.

Brynnik is not allowed to be around plants or pets for the first 100-days.  He will be leaving the hospital on a feed and 20+ pills a day, so he still has a way to go.

Brynnik will be released from the hospital next week and will move into SkyHouse Dallas upon his release.  He will stay there during all the days and nights we have him, which is 50% of the time.

We showed Brynnik his new “digs” yesterday through photos and a video, and he is super excited to move into his new place.

Darrell and I care only about his health and what is best for him, and we are so thankful to the SkyHouse team and everyone at Simpson Property Group who made this happen for us. I work with the most amazing and talented people, and I am so grateful to them, and thankful for their kindness, care and compassion as our family has been going through this trying time.

Here is to the next 100-days!

Video of Brynnik’s new ADA studio unit below:

https://www.youtube.com/watch?v=TaSR90-33w8

Gearing up for Transplant #2

We are so excited. Donor is doing their testing today, so we are gearing up to move forward with transplant #2.

The little unicorn will start new cocktail of chemo on Wednesday, for eight days. Then, transplant on June 17th or 18th.

This time around we are doing peripheral cells, so that they can get in his body faster, and hopefully engraftment before his body has a chance to reject them. The Drs. and nurses here at Children's Medical Center have been amazing and so positive through this harrowing experience.

They have a very aggressive plan to deal with the heightened risks involved with a second transplant with peripheral cells, which certainly alleviates some of his stress and worry, as well as mine. Praying that he doesn't get GvHD (Graph Vs. Host Disease) and that those little cells get where they need to go, as quickly as possible!

We are so appreciative of everyone's love, support, and prayers. I for one have only been able to do this because of all of you. 
Much love to you all.

Brynnik Johnson, the sleeping unicorn

Brynnik and Jennifer Johnson clowning around

http://www.gofundme.com/brynnikjohnson