Hospital release and gratitude

Today Brynnik had his central line removed and replaced with a port. He was groggy and wrapped like a little burrito but very excited to be released from the hospital tomorrow.

We are SO VERY EXCITED to have the little Unicorn on his first day of hospital release.  Once he is discharged he will move into his very own bachelor pad at SkyHouse Dallas. We were talking about it last night and he is stoked to have his own pad, at nine!

This has been a very long and hard road for Brynnik and a challenge for us all. Brynnik's amazing strength and faith in God, the power of prayer, the compassion and love from all of our family, friends, coworkers, neighbors, nurses, doctors and even strangers have been a true testimony of grace. 

We also want to say THANK YOU to everyone as they continue to love and support us as we move into the second 100-day phase of Brynnik’s recovery.  A special MEOW shout out to our friends who were willing to take on 2 wild-n-crazy cats, including my 3 cat lady friends and our 2 kitty-loving neighbors who asked to take on Lacey and George for 3- to 6 months. 

In the end, we decided on SkyHouse.  It’s the absolute best decision for Brynnik’s health.  The Doctors and Nurses of the D6 Wing are very supportive of the decision to not bring Brynnik into a home/establishment built pre-1930’s given the dust, dander and air quality systems in older homes.

Starting tomorrow Brynnik begins the next stage of his recovery.  Thank you for all the blessings and answers to prayer. We have so much to be thankful for.  We are very blessed. We are very thankful. 

All of our love

The Johnson Family

Brynnik's first apartment

Yesterday we signed the lease on Brynnik’s “bachelor pad” for the first 100-days after his release from the hospital.

The first 100-days are absolutely critical to his care and well-being, and Darrell and I feel whole heartedly that putting him in an apartment which is brand new construction, hepa-filtered apartment unit, where he will be the very first resident of his unit, is the most responsible and smartest option when it comes to his health.

Brynnik is not allowed to be around plants or pets for the first 100-days.  He will be leaving the hospital on a feed and 20+ pills a day, so he still has a way to go.

Brynnik will be released from the hospital next week and will move into SkyHouse Dallas upon his release.  He will stay there during all the days and nights we have him, which is 50% of the time.

We showed Brynnik his new “digs” yesterday through photos and a video, and he is super excited to move into his new place.

Darrell and I care only about his health and what is best for him, and we are so thankful to the SkyHouse team and everyone at Simpson Property Group who made this happen for us. I work with the most amazing and talented people, and I am so grateful to them, and thankful for their kindness, care and compassion as our family has been going through this trying time.

Here is to the next 100-days!

Video of Brynnik’s new ADA studio unit below:

https://www.youtube.com/watch?v=TaSR90-33w8

We have CELLs!!!

Today is an amazing day for Brynnik.  After 71 days in the hospital, 2 rounds of Chemotherapy, 1 full body radiation and 2 bone marrow transplants….. We have CELLS!

Brynnik’s second bone marrow transplant took place on Thursday June 18^th. We used the same donor as his original transplant; however, the Dr.’s used the donor’s stem cells and peripheral cells vs. bone marrow for his second transplant.

This morning, on day +9 from his second transplant, we received the miraculous news that our sweet Brynnik has an ANC (Absolute neutrophil Count) of 650. 

As for Brynnik’s next steps. The GCSF is causing his cell counts to be higher than they truly are.  Once Brynnik hits an ANC count of 1,000, they will eliminate the GCSF. This will cause his cell count to drop in half.

Once he stabilizes an ANC count of 500 for at least three days in a row, his body is truly engrafting.

Today marked an amazing day in Brynnik’s journey and he is ecstatic for his new cells.

We want to thank you all for your continued support, love and prayers during this difficult and taxing process. And a special thank you to all the amazing Doctors and Nurses at Children’s Medical Hospital and to all the staff in the D6 wing for keeping Brynnik, Darrell, myself, and Sienna sane throughout this process.

This is a true testament to the power of PRAYER.  Prayers through Brynnik’s next steps…. He is on his way!

OUR HERO – BRYNNIK JOHNSON

Daddy's Birthday Celebration

Celebrating Daddy's birthday with Sienna and Brynnik at Children's Medical Hospital in Dallas, TX. Happy birthday Darrell Johnson

AND look who dropped by - The Foxes!  

Celebrating Daddy's birthday as a family with lots of love and laughter, and mustaches. 

The Johnsons: Jennifer, Darrell, Brynnik and Sienna

The Johnsons: Jennifer, Darrell and Brynnik

The Johnsons: Jennifer, Darrell, Brynnik and Sienna

Brynnik's artwork for Darrell's birthday

Fox and JJ

Fox and JJ

Fox, Sienna and JJ

Sweet Brynnik with his "stache"

THE GANG! Sienna, Fox, Mr. Fox, Jennifer, Brynnik and Darrell

Jennifer and Brynnik

Sienna and Jenny

Sienna and her stache

Darrell, with ducklips and stache

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