Brynnik's first EZ Ride without his IV Pole

Yesterday afternoon, the nurses took Brynnik off his IV Pole for a few hours, and it was the first time Brynnik was able to experience walking without being attached to anything. It was a true moment of freedom for him. Darrell and I were so happy to be there to experience him slowly start walking around, then jumping around without having to drag his heavy IV Pole full of tubes, wires, cords, bags and feeds around behind him.

He then go onto his EZ Ride bike and took off for several laps around the D6 Wing at Children’s Hospital.  He was going so fast we had to get him to slow down a little.

My favorite part was when he was seeking up behind the nurses at the nurse’s station and surprising them. He was able to go into “stealth mode” and then started humming the JAWs attack music as he got closer to them.

SO much laughter, so many smiles, it truly was a remarkable moment for Brynnik.

Links to Brynnik’s videos:

https://www.youtube.com/watch?v=Duw_aXN3MEc

https://www.youtube.com/watch?v=mlHp6_Nu9b4

Gearing up for Transplant #2

We are so excited. Donor is doing their testing today, so we are gearing up to move forward with transplant #2.

The little unicorn will start new cocktail of chemo on Wednesday, for eight days. Then, transplant on June 17th or 18th.

This time around we are doing peripheral cells, so that they can get in his body faster, and hopefully engraftment before his body has a chance to reject them. The Drs. and nurses here at Children's Medical Center have been amazing and so positive through this harrowing experience.

They have a very aggressive plan to deal with the heightened risks involved with a second transplant with peripheral cells, which certainly alleviates some of his stress and worry, as well as mine. Praying that he doesn't get GvHD (Graph Vs. Host Disease) and that those little cells get where they need to go, as quickly as possible!

We are so appreciative of everyone's love, support, and prayers. I for one have only been able to do this because of all of you. 
Much love to you all.

Brynnik Johnson, the sleeping unicorn

Brynnik and Jennifer Johnson clowning around

http://www.gofundme.com/brynnikjohnson