We have posted
many updates since the initial post outlining what had been going on with
Brynnik - this was the initial post in November 2014.
In November 2014 I took my son in to see the
pediatrician after noticing bruises all over his legs, arms and back. She
immediately sent us to Children’s Medical Hospital where after 2-days of blood
tests and a bone marrow biopsy it was determined that his bone marrow was
either not producing, or, destroying his platelets. He was low on red and white
blood cells, but the severity of how low his platelets were flagged that
something was seriously wrong with Brynnik.
Brynnik has been going to Children’s on a weekly basis to check the levels of his red blood cells (RBC), white blood cells (WBC) and platelets. Each week he has received some form of blood or platelet transfusion, and at times, he has received multiple transfusions given how severely depleted his platelets have been.
The doctors at Children’s have tested for every known and several extremely rare diseases, ultimately trying to determine what has caused Brynnik’s bone marrow to stop producing red blood cells and platelets.
Brynnik went back to Children’s on January 15 2015 for his second bone marrow biopsy where it was then confirmed that he will start chemotherapy in approximately 4-weeks, depending on donor match, to destroy his existing bone marrow. Once that phase is completed, which should take 7 consecutive days in the hospital, he will then go through a bone marrow transplant, which will take a minimum of 45 consecutive days at Children’s Hospital.
Brynnik’s sister unfortunately is not a bone marrow match, and we are actively searching for a match through the Bone Marrow Registry.
Brynnik has been going to Children’s on a weekly basis to check the levels of his red blood cells (RBC), white blood cells (WBC) and platelets. Each week he has received some form of blood or platelet transfusion, and at times, he has received multiple transfusions given how severely depleted his platelets have been.
The doctors at Children’s have tested for every known and several extremely rare diseases, ultimately trying to determine what has caused Brynnik’s bone marrow to stop producing red blood cells and platelets.
Brynnik went back to Children’s on January 15 2015 for his second bone marrow biopsy where it was then confirmed that he will start chemotherapy in approximately 4-weeks, depending on donor match, to destroy his existing bone marrow. Once that phase is completed, which should take 7 consecutive days in the hospital, he will then go through a bone marrow transplant, which will take a minimum of 45 consecutive days at Children’s Hospital.
Brynnik’s sister unfortunately is not a bone marrow match, and we are actively searching for a match through the Bone Marrow Registry.
#brynnikjohnson #bethematch #bonemarrow #bonemarrowfailure #bonemarrowtransplant #savealife
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