Friday, March 6, 2015

Brynnik Johnson update - March 6th

Back at Children’s Hospital this morning, Brynnik needs a new set of platelets, so it’s transfusion day. The Dr.’s checked his ferritin levels because he has received so many transfusions since this started back in November. His ferritin levels came back at 856, with normal ranges between 7 - 140.

Even with the significant elevation of his ferritin levels the doctors don’t seem to be as concerned; however, they definitely want to keep an eye on them as there is a potential it could pose a problem once we are in the chemotherapy and bone marrow transplant phase.

Good news is we have two potential donors. One is an international donor and conducted their testing last week. Children’s is waiting for their samples so that they can perform their own HLA tests. The other potential donor is stateside and had their testing conducted just yesterday. Hopefully we will have the results from both potential donors back next week.

We keep praying that both donors will be a match for Brynnik. In case he had a host versus graft reaction during the transplant phase, having a second donor lined up in advance would be very beneficial.

I am continually amazed, humbled and inspired by how strong he is throughout this whole ordeal. God certainly made him a warrior.


Brynnik Johnson at Children's Medical Center - Dallas, TX

Darrell and Brynnik Johnson

#brynnik #brynnikjohnson #bonemarrow #bonemarrowtransplant #bethematch

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