Saturday, June 27, 2015

We have CELLs!!!

Today is an amazing day for Brynnik.  After 71 days in the hospital, 2 rounds of Chemotherapy, 1 full body radiation and 2 bone marrow transplants….. We have CELLS!
Brynnik’s second bone marrow transplant took place on Thursday June 18th. We used the same donor as his original transplant; however, the Dr.’s used the donor’s stem cells and peripheral cells vs. bone marrow for his second transplant.
This morning, on day +9 from his second transplant, we received the miraculous news that our sweet Brynnik has an ANC (Absolute neutrophil Count) of 650. 
As for Brynnik’s next steps. The GCSF is causing his cell counts to be higher than they truly are.  Once Brynnik hits an ANC count of 1,000, they will eliminate the GCSF. This will cause his cell count to drop in half.
Once he stabilizes an ANC count of 500 for at least three days in a row, his body is truly engrafting.
Today marked an amazing day in Brynnik’s journey and he is ecstatic for his new cells.
We want to thank you all for your continued support, love and prayers during this difficult and taxing process. And a special thank you to all the amazing Doctors and Nurses at Children’s Medical Hospital and to all the staff in the D6 wing for keeping Brynnik, Darrell, myself, and Sienna sane throughout this process.
This is a true testament to the power of PRAYER.  Prayers through Brynnik’s next steps…. He is on his way!
OUR HERO – BRYNNIK JOHNSON








Thursday, June 4, 2015

Gearing up for Transplant #2

We are so excited. Donor is doing their testing today, so we are gearing up to move forward with transplant #2.

The little unicorn will start new cocktail of chemo on Wednesday, for eight days. Then, transplant on June 17th or 18th.

This time around we are doing peripheral cells, so that they can get in his body faster, and hopefully engraftment before his body has a chance to reject them. The Drs. and nurses here at Children's Medical Center have been amazing and so positive through this harrowing experience.

They have a very aggressive plan to deal with the heightened risks involved with a second transplant with peripheral cells, which certainly alleviates some of his stress and worry, as well as mine. Praying that he doesn't get GvHD (Graph Vs. Host Disease) and that those little cells get where they need to go, as quickly as possible!

We are so appreciative of everyone's love, support, and prayers. I for one have only been able to do this because of all of you. 
Much love to you all.
Brynnik Johnson, the sleeping unicorn

Brynnik and Jennifer Johnson clowning around

http://www.gofundme.com/brynnikjohnson