Brynnik's bone marrow biopsy results

We received Brynnik’s results from his bone marrow biopsy yesterday. Unfortunately he is hypo cellular. Meaning the transplant wasn't successful.

We are currently waiting to hear if the original donor is willing to make another donation, as there are no other matching donors in the bone marrow registry right now. He's very neutropenic right now. His white blood cells are at 0.1 which means he has no way of fighting off the simplest of infections.

Because of this ...we have decided to severely limit visitations, though he has enjoyed everyone's time with him, and we're so grateful to all the people who have made him smile. At this time we're not sure how long we'll be here, there are so many unknown factors and additional risks the second time around.

We are so grateful to everyone for the love, words of encouragement, support, and prayers. It's definitely made a world of difference to us all through this season of challenges.

#brynnik, #brynnikjohnson, #brynnikdallas, #Aplasticanemia, #Bonemarrow, #bethematch

http://www.gofundme.com/brynnikjohnson

New friends: Brynnik and Trevor

Brynnik had the best afternoon today, he played Plants vs. Zombies with his new buddy Trevor Harvey. I so appreciate Ginney and Buddy for taking time out of their afternoon to bring their wonderful grandson Trevor down for a visit. These two little guys are becoming fast friends.

Trevor donated his Xbox One system to the D6 wing of Children's Medical for Brynnik to use during his stay, and for the other children of this unit to use upon his release. Trevor is such a thoughtful and sincere little man. When they are together, it's as if Brynnik and Trevor have known each other their entire lives.

Thank you again to the Harvey family, and to Ernie Estrella and family for the Plants vs. Zombies game gift. It's definitely getting put to good use!

First meeting!! Brynnik and Trevor

Brynnik and Trevor bonding over Star Wars, car games and Plants vs. Zombies

Brynnik and Trevor bonding over Star Wars, car games and Plants vs. Zombies

New hospital door design, by Brynnik and Trevor 

http://www.gofundme.com/brynnikjohnson

Joy Macarons

A very special THANK YOU to the lovely Liz Lanier of Joy Macarons; her delicious gift for Brynnik’s nurse and tech staff at Children’s Medical Hospital was a huge hit!  Brynnik handed them out to the delight of the Drs and nurses in the D6 wing.

It brought JOY to everyone, especially Brynnik. 

More about Joy Macarons:  http://www.joymacarons.com/

Brynnik Johnson’s fund: http://www.gofundme.com/brynnikjohnson

Brynnik and his bag of JOY

Sibling love

The sweet donuts were able to spend a little bit of time together this morning. Such cuties. 

#brynnik #brynnikjohnson #brynnikdallas #dallas #sienna #siennajohnson 

Www.gofundme.com/brynnikjohnson

Fever post bone marrow transplant

We are on our second round of fever tonight. We are on day +16, and engraftment happens. On average, between days +21 to +30, with some children taking up to day +40. 

The biggest concern with the recent fever is it could be the initial signs of an infection. On the opposite spectrum, it could be the initial signs on engraftment . 

They took 4 syringes of blood out of Brynnik's central line for testing and to run cultures. They are starting him on a broad spectrum antibiotic to help against the potential risk of infection.  

Luckily he is sleeping peacefully right now. 

Please say any extra prayer for Brynnik tonight. 

And thank you again for all your love, compassion and kindness during this time. 

Daddy's Birthday Celebration

Celebrating Daddy's birthday with Sienna and Brynnik at Children's Medical Hospital in Dallas, TX. Happy birthday Darrell Johnson

AND look who dropped by - The Foxes!  

Celebrating Daddy's birthday as a family with lots of love and laughter, and mustaches. 

The Johnsons: Jennifer, Darrell, Brynnik and Sienna

The Johnsons: Jennifer, Darrell and Brynnik

The Johnsons: Jennifer, Darrell, Brynnik and Sienna

Brynnik's artwork for Darrell's birthday

Fox and JJ

Fox and JJ

Fox, Sienna and JJ

Sweet Brynnik with his "stache"

THE GANG! Sienna, Fox, Mr. Fox, Jennifer, Brynnik and Darrell

Jennifer and Brynnik

Sienna and Jenny

Sienna and her stache

Darrell, with ducklips and stache

http://www.gofundme.com/brynnikjohnson
http://www.brynnikjohnson.com

#brynnik, #brynnikjohnson, #brynnikdallas, #brynnikjohnsondallas, #bonemarrowtransplant, #childrensmedical

Day +11

We've had some good moments, followed by lots of sleeping and nausea. And, his hair is coming out in patches. But, he is still able to find joy and laughter each day. I'm so proud of him. He truly is a magical little unicorn. 

http://www.gofundme.com/brynnikjohnson

The Artist, Brynnik, at work

Brynnik cuddles are the best